Thursday, 12 April 2007

Diagnosis

So, I went to the Neurosurgeon with my mother on 20th of June. He told me that I had a pituitary tumor, that it was benign and that I needed to stay at the Hospital several days to have some tests done. It was quite a shock for me. I was told that there was no room at the Neurosurgery Wind, so they gave me a bed at the Endocrinology Wind. I didn’t know that it was related to the Hormones! As soon as I was given a bed and changed my clothes, a Doctor came in and told me that I was suffering from Acromegaly. He didn’t know who I was or why I was staying there. It seemed that my face was so acromegalic, and he explained a little about my disease, and all the changes that were supposed to have happened in my body.

I stayed at the Hospital for 10 days. I have to say that all the doctors that were passing by, told me that I had acromegaly. This made me sad, because my face is so obviously acromegalic… And nobody had told me before. My parents took to the doctors some pictures of me from the previous years, and they told me that my face had started changing ¡10 years ago! I had all these blood tests done, an MRI, and I was told that it was so huge that I could not have the surgery done at that time. They told me it was too risky because of it size and position (compression of the carotid arterys). So, they prescribed me “Somatuline Autogel 120 mg” shots, once a month, during 4 months. I had a 30% chance that with this medication the tumor reduced. And I was told to be back at the Hospital in October, to have my surgery done.

They also gave me the results of the tests:
GH: 32.20 ng/ml
IGF1: 734 ng/ml
Dimensions of it: 4.5cm x 4.5cm x 3.5cm
And I do not know how to translate the medical name for the lost of the upper outer quarter of the visual field in each eye, due to the compression of the optic nerve.

4 comments:

Ken D. Webber said...

The club just keeps getting bigger! I also have acromegaly. www.kendwebber.com Keep your spirits up! I just switched to a new med so my IGF-1 levels are a bit off. Watching my carbs though and getting lots of dopamine. Drop a line sometime.

Starbucks Addict said...

Hello. I have acromegaly too. Surgery last December. Starting Sandostatin LAR this month. Good luck with treatment. I'm here if you'd like to talk. I made a blog as well to share my experiences.

http://sbux-addict.blogspot.com/

Jenny

Ben U'Ren said...

Thanks for sharing. I am a medical student and have just been studying acromegaly. You've done a wonderful job explaining your condition and I am grateful to hear your first-hand patient experience. Thanks. I hope your treatment is working. Also, I believe the vision loss you are describing translates to bitemporal quadrantinopia (vision loss in the upper and outer quadrant of each eye). From what I've read, this is a common effect of pituitary tumors, so you are not alone. Thanks again, and best of luck to you.

almu said...

Hi Ben!
Thaaaanks a lot for your comment... I feel so pleased that anyone can find this blog interesting, that is what it is supposed to be!
Thanks a million times!