I went to the Hospital on August 24th to have my post-op MRI. It is a strange feeling when you go to do any of these tests and know the results in advance: neurosurgeons told me the day after the operation that there was a lot of tumor left and I had no changes after (hands, feet, face look exactly the same).
But each of these steps always means that the end is approaching somehow. It means that I have to do one less thing, I suppose you understand...
The point in posting about this is that, while I was sitting in the waiting room for the MRI to be done, a woman in her 50's came in and sat down. Inmediately, I knew that she had acromegaly too. It was so shocking that I had to think for a couple of minutes before I went to her and said: 'Excuse me, may I ask you a question?' and as she was saying yes she was also saying 'you also have acromegaly, haven't you?' It was so amazing!!! We spoke for 5 minutes or so and I carefuly suggested to her the idea of keeping in touch, or trying to know/meet more acromegalics. She politely refused...
I thought that she was going to be as fascinated as me or even more (she told me that I was the first acromegalic person she had ever met) but she wasn't interested at all... I felt quite dissapointed, if I had met her one year ago (newly diagnosed), I would had felt really sad, but each one decides how to live his/her life, no?
That makes me feel so so so proud of having found you all, you have made me feel that I am not alone, and have helped me to understand my feelings... Thank you so much for being there...
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4 comments:
I'm sorry to hear things didn't go as well as hoped :-(
I guess everyone has their own way with dealing with things, and who knows what else the lady you met is going through. I agree though, I'm so happy to have this support group online!
Strange how people deal with the same thing in very different ways. Well done for offering her your hand. I hope you're feeling ok. Natalia esta es en Espana ahora a ver tres conciertos de los HombresG (dios mio!)
I am sorry to hear about the results - what a disapoointment. Please keep us all posted on your treatment and progress (I know you will as time permits).
You're right about how being in touch with peope who have the same health struggles can help you get thru it. I agree with Jason, it was very considerate and kind of you to offer to keep in touch. I am glad so glad to have met y'all!
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